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Showing posts with label myalgic encephalomyelitis. Show all posts
Showing posts with label myalgic encephalomyelitis. Show all posts

Thursday, 3 November 2016

1611.03 IT'S NOT M.E. IT'S YOU

Myalgic Encephalomyelitis (ME) is a long-term (chronic), fluctuating, neurological condition that causes symptoms affecting many body systems, more commonly the nervous and immune systems. ME affects an estimated 250,000 people in the UK, and around 17 million people worldwide.

Morticia has suffered from ME for around 10 years now, it's a condition that has completely affected her life and the life of our family. The condition is sometimes referred to as 'Chronic Fatigue Syndrome' (CFS) but I feel this term doesn't do it justice. It's still difficult to get medical types to take this seriously and we've encountered some very close minded and judgemental GPs in our time.
My attention was peaked when I saw this on the BBC and initially thought that finally the NHS was rolling out a treatment/therapy. Then my heart sank a little when I found out it was about a 'so called' landmark chronic fatigue trial could treat two-thirds of children who suffer with ME.

The problem with this treatment is that they are suggesting a psychological treatment for a neurological disorder, that's like applying ointment on a severed limb and hoping it'll grow back. Suggesting that ME is 'all in the mind' is detrimental to the many who suffer from this chronic, fluctuating and varied neurological condition that affects sufferers in a variety of ways.

The only positive from this example of frankly lazy journalism is that it's given the whole issue some exposure even if the facts are wrong. I guess any exposure about this - often swept under the carpet condition - is good and it has facilitated some discussion. I'll take this small positive from it.

Thursday, 6 October 2016

1610.06 NEW FIVER

Last month in the UK a new £5 banknote printed on polymer, a thin flexible plastic film, was issued. The new note bears the image of wartime leader Sir Winston Churchill on the reverse. The new note can apparently last about five years longer than paper notes and features loads of new security features, making the note extra hard to counterfeit. They include a see through window featuring the Queen’s portrait as well as the Elizabeth Tower (commonly mistakenly known as Big Ben) depicted in gold foil on the front of the note and silver on the back. The £5 will be joined shortly by new £10 and £20 notes which also will be printed on polymer.

Since the new notes came into circulation there has been a movement on social media under the hashtags of #firstfiver and #fivergiver to donate the first £5 note you receive to charity.
I got my first one this week and thought it was a great idea to give it away so I donated my first fiver to Action for ME, a life changing condition my wonderful Morticia has struggled with for almost 10 years.