1012.19 LIVING WITH ME

As anyone who has known me for any length of time or used to read this blog some time ago will know, my wife, Morticia, has had a long standing illness which challenges us every day. A few years ago she had open heart surgery and we hoped that once recovered things would return to normal. Unfortunatly this has not been the case and after years of testing and visits to doctors and clinics, this year, we finally got a clear diagnosis of CFS/ME. I'm not going to go into what that is here, if you want to know then feel free to Google it.

We struggle through day to day and as her primary carer I can meet most of her immediate needs. Where I fail is in the looking after the house and garden, getting those little jobs done etc. Don't get me wrong, our house is clean, it's just cluttered with things that really could do with sorting out. With my time filled with work then the needs of the kids and Morticia I rarely get time to do anything else. When I do get downtime I need it to rest and use it to either relax or explore a creative outlet. My cycling is confined to commuting or extended commutes, no leisure rides for me.

Don't misunderstand me, I wouldn't swap anything and I'll do anything for my Morticia and my children. Sometimes it all gets on top of me but I don't have a channel I can express that through. Friends are great but surely they're getting bored of hearing about my problems.

There is a small light at the end of the tunnel. Last week we finally managed to get to see the CFS/ME service for South Yorkshire and North Derbyshire. It was an experience to finally speak to a health professional who understood. I have high hopes for our future, and hope that together we can manage this and get on with our life together.